Undiagnosed Conditions

[marelloy]

I have been suffering with pain for 28 years. I have been to every kind of specialist you can think of and taken every test and pill there is for the symptoms I have. It all started after my pregnancy with my second child. I had a feeling of discomfort in my chest and it was difficult to breath. Several years later I ended up in Stanford hospital at 110 lbs not able to keep food in my body. My body was rejecting any food that I tried to eat or drink. Stanford Hospital ran a colitis test and other gastrointestinal tests and found nothing. After about a week in the hospital my body was slowly recovering by taking medication to slow down my bowel. I was very weak. My family physician told me that I needed to start exercising to regain my strength. I started walking; when one day I felt a horrible pain in my chest making it even more difficult to breath. I saw many doctors about my symptoms and all I heard was take these pills or it is all in your head. The medications made my symptoms worse. Some medications they put me on were, muscle relaxers, asthma inhalers, and anxiety meds. I have tried needle therapy, cupping, body detoxing, pressure point therapy, and the dreaded Tens Machine. The Tens Machine sent electrical impulses through my chest area to try and relax my muscles I was told ( they use this machine on athletes that have muscle injuries ). Ever since I have used this machine on my chest the pain is unbearable. It feels like there is an elephant on my chest that wont get off, I can't sleep, my gastrointestinal tract causes me discomfort, and my heart is enlarged. My body shakes while I sit quietly like my heart is beating really hard against my chest wanting to get out. When my chest feels tight ( like someone has me in a tight bear hug ) I have to get up and walk around and then I can feel the tightness release some but never all the way. Exercise helps a little. If I sit too long my chest gets too tight and I feel like I am going to faint because I can't breath. Sometimes when my chest muscles release an uncontrollable belch or passing of gas happens. It is difficult for me to talk because my chest gets tight and it is hard to breath. A new symptom that has began in the past 5 years is that my eyes burn. I have no idea who to go to or how to find a way to live a normal life. Due to this illness I have missed out on a lot in my children's lives. Please help! I am in pain every day, all day and night.

[softwareworks]

50 years of pain, and no Dr. could figure it out, but ....

Four years ago, I had been so sick I was literally planning my own funeral; but now am alive, well, and [literally] seem to be growing younger!! I know what it is like to be so sick that you can’t function, and to hurt so bad for so long that you would rather it would please all be over. I know what it is like to just only want to feel better -- or at least not have to feel the constant pain and fatigue.....and to know that it’s probably never going to go away, but, instead, have to face it every day for whatever days are to come.

By Our Heavenly Father's graciousness and miraculous intervention (-- another story in itself), I was able to learn what had been wrong with my body (-- no credit to any of the numerous specialists who were clueless ... and, as it turns out, should not have been). And since then, I have been able to find practical, non-toxic solutions to my connective-tissue disintegration, and to (related condition) inadequate protein synthesis, and the severe memory problems, and the vertigo, and the candida yeast overgrowth, and most of the chronic neurotoxic-chemical hypersensitivity ("multiple chemical sensitivity" diagnosis), and the mercury/lead/cadmium/nickel accumulation (shown by blood and urologic tests), and the near-fatal-level arsenic accumulation (also shown by urologic tests), and the celiac-sprue (-- an inherited auto-immune disease which is triggered by eating grain gluten, and tested using an immunologic antibody titer test).

I also was carrying a huge load of parasites -- in my whole body -- not just in my intestines. (The US Center for Disease Control has stated that at least 85% of healthy Americans carry detectable levels of worms. And that just applies to the detectable ones.)

So, there is my "credential" to have something to say here.

Anyone who suffers with any form of intestinal or stomach inflammation, degeneration, or indigestion should be tested for celiac sprue -- a genetic illness affecting about 3% of Americans -- especially of northern European heritage. The test is a simple genetic test from a cheek swab or blood sample. Of those 3%, about .06% of the population actually have a correct diagnosis! Only .06% !! It is the most mis-diagnosed disease in medicine, because of the multitude of effects that it can bring, and the number of other illnesses that it enables ... yet it is well known and understood by any gastroenterologist! It can be tested with a simple blood test -- either by blood draw in a lab, or an in-home test. You have more than enogh symptoms to justify the test, if you haven't already gotten it.

Celiac is now proven to show up as a wide variety of neuralgic symptoms -- even if there is not intestinal deterioration! But few physicians are aware of the now-proven ties of Celiac to schizophrenia, some types of epilepsy, and a variety of very painful neurapathies! Even if you don't have celiac, there is also a variety of food allergies that can bring on the neuralgic symptoms -- which are all easily tested for with one blood test. But physicians never have the blood tests run -- but instead incorrectly assume that if you don't have food allergy reactions on a skin-patch test, you don't have neuralgic food-sensitivities. Wrong!! 13% of Americans (13%!!) live with gluten-sensitivity reactions that won't show up on a skin-patch test. (And that only counts with gluten-sensitivity reactions.) If you haven't yet tried a long-term allergen-isolation diet (difficult to maintain), or a live-blood food-sensitivities test (easy to do), you might well find that you find some answers there.